Meaning-Making of Infertility: Digital Interaction and Identity Negotiation in an Indonesian IVF Support Community
DOI:
https://doi.org/10.12928/channel.v14i2.2370Keywords:
Digital communication, Online support community, Symbolic interaction, Infertility, TelegramAbstract
Online infertility communities have become important spaces for social support, information exchange, and connection among individuals experiencing infertility. However, less is known about how everyday communication within these communities transforms individual experiences into shared meanings. This study examines how members of the Indonesia IVF Community (KITA), an online support community on Telegram, construct and negotiate meanings through digital interaction. Using a qualitative phenomenological approach, data were collected in June 2026 through semi-structured in-depth interviews with two active KITA members, participant observation, and digital documentation. The findings identify five interconnected dimensions of meaning-making: emotional support, fertility literacy and collective knowledge, identity transformation, solidarity and symbolic language, and structural inequality. The study shows that KITA functions not merely as a channel for exchanging medical information, but as a communicative environment in which members interpret their experiences, develop shared knowledge, negotiate infertility-related identities, and construct solidarity. These processes, however, unfold amid differences in socioeconomic circumstances and access to fertility-related resources. The study contributes to digital health communication research by emphasizing how meanings are produced through everyday interaction. It also highlights the potential of online communities to complement formal fertility care through peer support and experiential knowledge sharing.
References
Aarts, J. W. M., Faber, M. J., Cohlen, B. J., Van Oers, A., Nelen, W. L. D. M., & Kremer, J. A. M. (2015). Lessons learned from the implementation of an online infertility community into an IVF clinic’s daily practice. Human Fertility, 18(4), 238–247. https://doi.org/10.3109/14647273.2015.1057901
Ardito, T., Sari, S., & Putra, D. (2026). Analisis Komunikasi Kelompok Pada Komunitas Vespa Bengkulu Bersatu Dalam Membentuk Identitas Sosial. Jurnal Multidisiplin Dehasen (MUDE), 5(1), 677–684. https://doi.org/10.37676/mude.v5i1.10033
Ayda, M., & Hendriani, W. (2022). Penerimaan Diri Terhadap Infertilitas: Studi Pada Perempuan yang Gagal Menjalani Program Bayi Tabung. Jurnal Ilmu Psikologi Dan Kesehatan (SIKONTAN), 1(3), 171–184. https://doi.org/10.47353/sikontan.v1i3.511
Blumer, H. (1986). Symbolic interactionism: Perspective and method (Facsim. ed.). University of California press.
Borowczak, M., & Rotoli, S. (2022). A Qualitative Exploration of Social Support in Males and Females Experiencing Issues With Infertility. Cureus. https://doi.org/10.7759/cureus.29763
Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa
Budiono, T., Setyaningrum, R. A., & Putri, A. P. (2026). Motives and Enjoyment of Watching Dashcam Videos on Social Media: A Phenomenological Study on Generation Z in Semarang. CHANNEL: Jurnal Komunikasi, 14(1), 14–30. https://doi.org/10.12928/channel.v14i1.2023
Creswell, J. W., & Poth, C. N. (2017). Qualitative Inquiry and Research Design (4th ed.). Sage Publication.
Erčulj, V. I., & Žiberna, A. (2022). The Role of Online Social Support in Patients Undergoing Infertility Treatment – A Comparison of Pregnant and Non-pregnant Members. Health Communication, 37(14), 1724–1730. https://doi.org/10.1080/10410236.2021.1915517
Hamidzadeh, A., Keramat, A., NaseriBooriAbadi, T., Chaman, R., Mogharabian, N., Rabiei, Z., & Salehin, S. (2024). Exploring the urgent need for an online reproductive health education program for infertile couples: A qualitative study. Journal of Education and Health Promotion, 13(1). https://doi.org/10.4103/jehp.jehp_925_23
Hidayat, M. N., Fahrianoor, & Siswanto. (2024). Exploring the Role of Social Media in Disaster Management: A Case Study of the 2021 South Kalimantan Flood. CHANNEL: Jurnal Komunikasi, 12(2), 117–128. https://doi.org/10.12928/channel.v12i2.847
Kovacs, G. T., Morgan, G., Levine, M., & McCrann, J. (2012). The Australian community overwhelmingly approves IVF to treat subfertility, with increasing support over three decades. Australian and New Zealand Journal of Obstetrics and Gynaecology, 52(3), 302–304. https://doi.org/10.1111/j.1479-828X.2012.01444.x
Lin, J. W., & Shorey, S. (2023). Online peer support communities in the infertility journey: A systematic mixed-studies review. International Journal of Nursing Studies, 140, 104454. https://doi.org/10.1016/j.ijnurstu.2023.104454
Low, J., & Thomson, L. (2021). Symbolic Interactionism and the Myth Of Astructural Bias: A Textual Defense and Illustrative Advice. Canadian Journal of Sociology, 46(2), 97–120. https://doi.org/10.29173/cjs29734
Miranti, A., & Wibawa, R. S. (2021). Konstruksi Makna Setara Melalui Perilaku Patriarkis Perempuan di Ruang Domestik dan Publik. Jurnal InterAct, 10(1), 35–46. https://doi.org/10.25170/interact.v10i1.2331
Montgomery, N. D. M. (2021). Uncovering In-Vitro Fertilization (IVF) Patient and Peer Relationships: A Qualitative Study on Self-Disclosure Processes in a Social Support Setting. https://doi.org/10.20381/RUOR-25929
Montgomery, N. D. M., & Terrion, J. L. (2023). Pathways to social support: IVF patients’ motivation toward peers and selection preferences. Health Care for Women International, 44(4), 378–396. https://doi.org/10.1080/07399332.2023.2172412
Montgomery, N. D. M., & Terrion, J. L., & Crighton, E. (2024). Building Social Support: Disclosure and Communication Processes Between IVF Patients and Peers in Canada. Women’s Reproductive Health, 11(2), 217–238. https://doi.org/10.1080/23293691.2023.2215765
Moustakas, C. (1994). Phenomenological research methods. SAGE Publications, Inc. https://doi.org/10.4135/9781412995658
Njogu, A., Njogu, J., Mutisya, A., & Luo, Y. (2022). Experiences of infertile women pursuing treatment in Kenya: A qualitative study. BMC Women’s Health, 22(1), 364. https://doi.org/10.1186/s12905-022-01950-4
Nowell, L. S., Norris, J. M., White, D. E., & Moules, N. J. (2017). Thematic Analysis: Striving to Meet the Trustworthiness Criteria. International Journal of Qualitative Methods, 16(1), 1609406917733847. https://doi.org/10.1177/1609406917733847
Putra, R. A., Lillah, A. S., Razi, A. T. F., & Aziz, M. A. (2025). Infertilitas, Teknologi Reproduksi Berbantu, Dan Penggunaan Kecerdasan Buatan: Suatu Tinjauan Etika Kedokteran. Jurnal Etika Kedokteran Indonesia, 9(1). 23–28. https://ilmiahindonesia.id/index.php/jeki/article/view/29
Perone, H. R., Herweck, A. M., Stump, H. M., Levine, H. M., Wong, A. J., & Carugno, J. (2021). The virtual infertility community: A qualitative analysis of patient experiences shared on Instagram. Journal of Assisted Reproduction and Genetics, 38(3), 613–620. https://doi.org/10.1007/s10815-020-02028-6
Rodríguez González, L., & Rodríguez González, J. (2022). Comunidades virutales de apoyo en Facebok sobre procedimientos de Fecundación in Vitro. Revista de Comunicación de La SEECI, 55, 168–182. https://doi.org/10.15198/seeci.2022.55.e794
Safitriana. (2022). Kemandulan (infertil): Stigma negatif pada wanita Indonesia. Direktorat Jenderal Kesehatan Lanjutan, Kementerian Kesehatan Republik Indonesia. https://keslan.kemkes.go.id/view_artikel/12/kemandulan-infertil-stigma-negatif-pada-wanita-indonesia
Schutz, A., Walsh, G., & Lehnert, F. (1972). The phenomenology of the social world. Northwestern university press.
Taebi, M., Kariman, N., Montazeri, A., & Alavi Majd, H. (2021). Infertility Stigma: A Qualitative Study on Feelings and Experiences of Infertile Women. International Journal of Fertility and Sterility, 15(3). https://doi.org/10.22074/ijfs.2021.139093.1039
United Nations Department of Economic and Social Affairs. (2024). World Population Prospects 2024: Summary of Results. United Nations. https://desapublications.un.org/publications/world-population-prospects-2024-summary-results
Van Der Meij, S., & Declercq, J. (2025). The best views come after the hardest climbs: Identity and community in infertility discourse on Instagram. Discourse, Context & Media, 65, 100880. https://doi.org/10.1016/j.dcm.2025.100880
Widianingsih, Y., & Cahyani, I. P. (2020). Digital Storytelling Melalui Media Sosial dalam Aktivitas Kehumasan Pada Perguruan Tinggi Alih Status. CHANNEL: Jurnal Komunikasi, 8(2), 109. https://doi.org/10.12928/channel.v8i2.16446
World Health Organization. (2023). Infertility Prevalence Estimates, 1990-2021 (1st ed). World Health Organization. https://www.who.int/publications/i/item/978920068315
Yeshua-Katz, D. (2018). Childless in an IVF-nation: Online stigma-coping strategies in support groups for childless Israeli women. Information, Communication & Society, 21(10), 1436–1452. https://doi.org/10.1080/1369118X.2017.1324504
Yuniarti, D. N., & Mirfat, M. (2023). Stigma Sosial dan Sikap Keluarga pada Pasien Infertilitas di Rumah Sakit Kepresidenan RSPAD Gatot Soebroto. Junior Medical Journal, 1(7), 835–846. https://doi.org/10.33476/jmj.v1i7.3233
Zhang, Z., & Luo, Y. (2025). Visualizing support: Exploring emoji usage in online support groups through the lens of symbolic interactionism. Telematics and Informatics, 98, 102252. https://doi.org/10.1016/j.tele.2025.102252
Downloads
Published
Issue
Section
License
Copyright (c) 2026 CHANNEL: Jurnal Komunikasi

This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.
